The exact number of cases of porphyries is unknown. However, estimates put it at 1 in 500 or possibly as high as 1 in 50,000 people worldwide. In general, coetaneous porphyries are the most common type of all diagnosed cases. For some types of porphyries, the exact prevalence is not known, because many individuals with a genetic mutation associated with the disease, remain asymptomatic throughout their lives.
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